Work vs Life Balance & the Freestyle Libre

I’m not sure why I keep paying for hosting or to keep this domain since I just don’t really feel the need to blog like I used to. I’m just too busy. Edward and I both leave for work at 12:20 PM and catch the bus and by the time I get home at 11 PM and take my insulin, change and head out in the car to pick Eddie up for Midnight and drive home it is almost 12:40 AM. We sleep 7 or 8 hours get up and do it all over again. That’s been the last year and a few months in a nutshell.

At first I was working 3 PM to 11 PM and was able to get discounted parking at $76 a month but then I requested an earlier shift at my doctors suggestion to help regulate when I ate supper and had my afternoon and evening breaks before and after supper because I was on both short and long acting insulin. Testing my blood sugar when I woke up and went to bed and before and one hour after every meal. They put me on a 1:45 PM to 9:45 PM shift with a 3 PM break, 5 PM lunch and 7:30 PM break which works out pretty nicely except that now I get to work about 1 to 1:15 Pm because I like being early and discount parking doesn’t start till 2 PM at Scotia Square’s Parkade. So I switched to taking the bus back and forth to work as the non-discounted parking is something like $200 a month with taxes.

It means using less gas, less wear and tear on the car and also more walking (walking to the bus stop, being outside more) and generally getting a bit more exercise so that part is a plus but I have to leave at 12:20 PM to get there by 1:08 PM for my 1:45 and when I leave at 9:45 the next bus is not till 10:23 PM which gets me home about 11 PM. So it’s a bit of a trade off. Bus passes are like $78 a month so only $2 more then parking. It’s just I could have left around 12:45 and got home by 10:15 If I drove.

There is no like work vs life balance really. Our weeks are taken up so much by work and getting to and from work that we have time for nothing else. When I worked at a place that had free parking and when I was on day or rotating shifts I found I could typically get more time to have a life and do things on the days I worked. So right now we are really living for the weekends lol.

I shouldn’t really complain. I get paid more then most people I know, more then my husband by about $6 an hour and because of me we have health benefits that cover 80% and dental that covers 90%. As well as I have short term disability benefits that cover 100% for a certain number of weeks and then 66.67% for the remainder until I am back at work and since I have been hospitalized twice since I started working there a little over a year ago and had to go on short term benefits 3 times in a year and 3 months I am really extremely lucky there.

Because of my benefits I was able to get this. It’s been’s a wonderful tool to have, the Freestyle Libre flash glucose monitoring system. After installing the sensor on the back upper arm you can just scan it whenever you want to see what your blood sugar is. Took me a little bit to get the hang of using it but now I use it almost exclusively and only test when it shows I am rapidly going low or high and even then when going low I know it. I can feel it and can act to catch it before it happens because the arrow shows me going low and then within minutes I feel symptoms. I admit I scanned like 35 times a day in the beginning. I was paranoid it was not working as I didn’t understand the 10-15 min delay and how to spot trends but now I can accurately use it to dose. Even though I still use my Contour Next One to double check.

I was able to bring my A1C down from 8.2% to 6.1%. With 8.2 that means my average blood sugar was about 11.9 mmol/l (215 mg/dl) and I brought it down to 6.1 which means average of 7.8 mmol/l (140 mg/dl). My target right now is I would like to get below 5.6% for my A1C and keep it there. But as with a lot of diabetics it will likely fluctuate I will likely go up and sometimes down. I just have to really use the Freestyle Libre and I am also going to try signing up for and using the LibreView software which I am going to sign up for after this blog post to see if I can figure it out. There is so much more I can be doing with it like recording insulin, carbs, exercise and using the charts to determine where I need to make more changes.

At the beginning of this post I said I don’t know why I keep paying for hosting and keep this domain but maybe I can use it to connect with other bloggers who are diabetic either type 1 or 2. I always loved the support you could receive in the blogging community and have been blogging for over 18 years. In fact I bought this domain in 2008 though I do not remember the month so this blog is now in it’s 10th year or almost in it’s 10th year! Wow

A lot can happen in two weeks.

I can’t believe it has been more then 2 and a half weeks since I last posted. Sometimes the time goes by so fast! A lot has happened in the last two weeks. I started Lyrica a bit more then 2 weeks ago. I spent a week so sick feeling that I missed the whole week of work. I guess that was mostly from Lyrica. I had really bad vertigo, plus regular old dizziness and nausea. I spent most of it in bed. When I sat up my world rocked (and not in a good way). I felt like I was on a ship swaying from side to side, then the spinning started.

It reminded me a lot like when I was sick before. Only this time I knew it was medication induced. After about a week it stopped. I am supposed to get blood work done and have a follow up appointment 10 days from my last one but I have not got the blood work or scheduled the appointment yet. I need to soon as he only gave me 30 days and I have have taken 18 already. Gotta get my ass in gear.

I ended up at the hospital last Monday. I took the day off cause I still was not feeling well and I also had an abscess on he underside of my left breast. I am guessing it was from the under wire in by bra. It started out just being a small sore then it filled with puss and you get the idea I am sure. Monday I had to go get it drained and they gave me IV anti-biotics on top of the ones I was already taken. It is not gone but it looks and feels a lot better. It was in such a bad place and it hurt so much.

While I was at the doctors the last time he mentioned something called polymyositis after I mentioned having issues swallowing and having issues with muscle weakness. I can not get out of a chair without using my arms, my legs alone are too week. He said those were not signs of Fibromyalgia really. It’s really uncommon so I am thinking it is not that but he said he was going to add it to the possible/suspected diagnosis to send to the Rheumatologist which I have been referred to. He said that a muscle biopsy would confirm it if it is that and if not then it may be related to Fibromyalgia. The list of issues just keeps growing. It’s kind scary.

On a lighter note, guess what? I finally found the Canon EOS Rebel T5 on the Dell.ca website today. So I decided to apply and see if I could get financing and I got approved! So I bought it! I am so excited and happy. I really wanted a DSLR and now I will finally have one! I was looking at the Canon EOS 70D but it was almost double the price and I really should start with a more entry-level instead of mid-range one. Since I really don’t know what I am doing. I am told I take good pictures but I have very little knowledge and no training. I am told by friends and family that have a Canon EOS Rebel that they are really easy to use and learn on. So I am hoping for the best!

I am going to take some time before it arrives to read the user guide and see what other resources I can find. It also comes with 2 lenses, an EF-S 18-55mm IS II and an EF 75-300mm III lense. I also need to find a decent editing software. Any suggestions? I know the obvious is Photoshop but anyone know of anything else? Free would be great I may also set up a photo blog. I am having a hard time writing every day but maybe some sort of daily or weekly photo blog would be good.

200th post! + More vertigo and pain.

So my last post was number 200 since March 12th, 2013 when this blog first started. I honestly can’t believe I have had that many. 200 posts in 2 years. Definitely doesn’t work out to one a day, one every 3-4 days maybe? I don’t know… Math’s not my strong point

I started the blog a while back to keep track of my symptoms and journey after being diagnosed with Fibromyalgia and Vertigo. I would love to say they are completely under control. They were for about a year, but the last few months they have been back. I just haven’t been blogging much about them.

It started back around August of 2014. When I got sick with that cough and they thought I had whooping cough. In the last 7 months my vertigo seems to have been slowly coming back and now it is bad enough that I am loosing my balance and falling again and getting nauseous.

The chronic pain is back as well. I constantly feel uncomfortable and my joints and muscles seem to hurt a lot. I have not really had an redness or swelling that I have noticed but find it increasingly more difficult to lay, sit or stand in one place for any length of time.

I am so bad at night the Cory has never came back in the bed from when I was sick a few months ago. I am constantly waking up and having to move. Even the new mattress did not help more then a few weeks. I get sensations of falling, sudden jerks (at night followed by the falling sensation) and feeling disoriented and nauseous almost on a daily basis again.

The pain keeps me up at night, makes me irritable and moody. I am missing work again (not nearly as much as last time), I am trying to push past it and keep going. I don’t like to be touched. Simply touching my wrist or shoulder can send me screaming in pain. I am so tired. Some days it’s a struggle to get out of bed but I am determined to push past it and think about other things.

I am coping with it better then I was before. I know what to expect this time I guess from having gone through it so bad the first time. I am being referred to the Atlantic Dizziness and Balance Institute again and also a Rheumatologist to try and see if we can get farther then last time and see if I can get back into physio. My family doctor suggested massage but honestly I don’t know if I can stand having anyone touch me right now.

I am not looking forward to it to starting the whole doctor thing again. Last time I saw a few different doctors all with their own opinions and no concrete answers. Just the diagnosis of Fibromyalgia which half of them didn’t even believe in. I am hoping that this time they may be able to come up with some concrete evidence of something. But I don’t want to get my hopes up to much.

I’m a software agent!

So today was my first day as a software agent officially as last week they still had me taking hardware calls on Friday and doing any software emails as they came into the bin, as there was not enough software emails in the bin. I was a bit excited last night about a full day of emails while listening to music. However they ended up just sticking me on the phones in the afternoon as there was no emails left in the bin. Nothing like getting thrown into the fire…

There is so much difference between hardware and software it is unbelievable. With hardware you have projectors and with the exception of the interactive projectors that actually just project onto the wall or a plain old whiteboard (the old school kind) and the touch is through the pen or through what they call a light curtain, anyways the rest of the projectors are just that, a projector that connects to a computer and gets image via a VGA or HDMI cable and that the touch part is the actual whiteboard which connects to the computer via USB.

There is many things with hardware that can go wrong, image issues, touch issues, kids breaking things, pens not writing, etc and it usually all comes down to something not plugged in or something that someone broke. Typically though it is usually just common sense that as you are walking a teacher through steps on fixing the issue it clicks in their head and their head (until next time anyways when they seem to forget everything you told them a week before when it happened lol). Sometimes also the boards need to be calibrated or oriented etc. All simple stuff. All fairly easy for me to understand. Though I am sure I remember feeling overwhelmed myself in training 3 years ago and almost breaking down and crying one day.

But with software there is way way more issues that can go wrong. There are errors, there are usability issues, installation issues, computer issues, OS issues, compatibility issues, and just plain “the issue is between the computer and the chair” issues. If you don’t get that one, think about it a sec, who is between your computer and your chair? Lol you would be surprised how many people do not get that…

It’s all a little overwhelming but I am just glad to have something different to do, some calls where I feel challenged and have to really dig to find the answers rather then walking away from my computer, grabbing a drink while talking and saying everything by memory.

It’s different, that’s for sure and despite myself I am actually going to love it I think. Even if I resisted so long.

Other then that it was an interesting day in other ways. Last week I was moved over by a window from in the middle of the center. I forgot how much I missed sitting by the window. Hopefully these 2 images will explain themselves.

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Handwriting recognition, Asthma, and allergies.

I am really having a hard time with blogging lately. Its not that I don’t have the time. I do. I just either forget about it or I start but then get sidetracked and then I never finish my post. By the time I go back, I just want to start over. I thought some about giving up the domain and hosting, but I really don’t want to. I love the domain name so much and have had it since 2005. I just can’t imagine getting rid of it! Both the domain name and hosting are due to renew soon…

I was sick all last week again. I got a cold over the weekend and ended up with a really bad cough again. I missed a week of work because I was so sick. I couldn’t breath and was coughing up so much phlegm I was literally choking on it. I was also running a fever and had the chills. I lost my voice completely for 6 days, which is why I didn’t go to work. Its really starting to suck. I am constantly getting sick or not feeling well. It’s rough.

Oddly enough on Monday of this week I went to see a specialist at the hospital and had a Pulmonary function test done and I ”passed” it . So the specialist said she does not actually think I have Asthma… which I find frustrating, for one thing I was diagnosed, and have been treated for Asthma since I was five, when my Mom and Dad bought me a down filled duvet and Smurfs cover and sheets.

I had a bad reaction to the down fill and kept waking up wheezing, gasping for air and turning blue. I also had hives, but no swelling or Anaphylaxis. I developed a cough as well. They did allergy testing and said I was allergic to feathers, cats, rabbits and dust and mold. They also did pulmonary function tests and said I had Asthma and I have been treated for and taken medication for ever since. I have even been hospitalized a few times for my Asthma. So to say I don’t have it doesn’t make sense to me at all.

In my teens and 20’s and 2 years ago they repeated the tests and nothing changed. This time however on Monday they said I passed all the pulmonary function tests and that they don’t believe I have Asthma and that my allergy tests only showed an allergy to dust (which I could clearly see for myself, and feel because of the hives, redness, swelling and itching). I know its possible for allergies and even Asthma to change and/or go away, but I just don’t buy that its not Asthma and I don’t know why I have pretty much had this cold and cough since August.

Anyways, while I was sick my Musee Notier stylus came from Japan, my folding case for my tablet, and the screen protectors that I ordered. I’m loving the stylus and handwriting recognition. It works fairly well. I found an Andriod app that incorporates handwriting recognition in the WordPress app, Chrome, and just about any app that uses a keyboard. Its called StylusBeta. Where ever the keyboard would shorw you get an area to write and as you write it turns to ”typed” words. It’s fairly accurate and even recognizes my messy writing quite well.

Winter is finally here after a late start. Since January 1st we have had 109.1 cm of snow fall. In the last 48 hours we have had about 30 of that 109.1 fall. We are supposed to get 10 cm tomorrow, 10 cm on Monday, 10 cm Tuesday and 10 cm on Thursday of next week as well with cold temperatures all week. So what is all ready there is not likely to go anywhere. So much snow! New Brunswick and P.E.I. have actually had more then us! Needless to say, with so much snow and with no snow tires my car has not left the parking lot. I tried on Monday and got stuck so I decided to leave it where it is. Cory’s Dad has driven me in and I hitched rides with co-workers or took a cab back home…

I haven’t even tried to go anywhere else. Just started my car a few times to make sure it works. Which twice it actually didn’t and we had to get a boost. Other people on my street are in the same boat. I’ve had to boost one guy twice and he in turn boosted us once and pushed my car to the other side of the lot a few times cause we couldn’t even get it over there when it would start. This has been a brutal few weeks weather-wise for the whole Atlantic sea-board (I think thats what its called).

At work this week, I was trained on software support. I y-corded with 2 software agents and did a few hours of email only time. They do that with all new agents or agents switching to other projects or departments within projects. I’ll have another day or so of email and y-cording and then by Tuesday I should be taking calls. I’m excited to be doing something different since I didn’t get a coach position last time they hired. Just going to keep trying I guess. But I am getting tired of filling out the coach workbook and applying.

I think I am done writing for now, my hand is starting to cramp and the tip of my stylus which is rubber is starting to squeak. That really doesn’t sound right…