I have noticed something lately that seems to be another symptom possibly of Fibromyalgia that I had not really thought of before, however seems to be happening often. I am always cold. I mean hands and feet turning blue! It happens a lot. I will lay in bed at night trying to cuddle as close to Cory as possible because he is always so warm and I am forever feeling cold. He says my feet and hands are like ice.
I don’t really know if this has to do with Fibromyalgia or with maybe poor circulation but it is hard to regulate my body heat, especially in the winter. Turning up the heat has little effect till the house is sweltering and Cory is complaining it is too hot. My fingers and toes are numb with cold most of the time. I guess it’s something to ask my doctor about. Just another thing to add the the ever growing list of things…
Getting to and staying asleep has become a bit of a chore lately. I have been waking up every few hours and suffering fro what I can only assume is some sort of sleep paralysis. The first time it happened I thought I was either having a bad dream or some sort of paranormal experience. Ya my brain just automatically goes there!
I woke up out a dead sleep in the middle of the night. I could hear Cory beside me moving in his sleep. I could feel the weight of the cat on my feet and felt completely awake, however I could not move at all. It lasted what felt like minutes to me but I am sure was only seconds. I was really freaked out and had a hard time getting back to sleep.
I usually take 30mg of Amnitryptoline before bed. It was working really good for a bit. Now when I fall asleep, two to three times a night, I get the sensations of falling. I’ve had this before but not this bad. It happens almost every single night to varying degrees.
I know the falling sensation which will happen when I am sitting down and relaxed sometimes too can possibly be attributed to a vestibular (ear) issue. Which I am still waiting for a MRI to diagnose. I mistakenly thought previously that it was ruled out but I got a call a few weeks ago for the MRI and when I asked what it was for she said to help rule out or diagnose any vestibular related issues. I kinda thought the other testing ruled it out but apparently not completely.
I am rely struggling with not only getting enough sleep but the quality of my sleep too. I am waking up as tired, if not more tired then when I went to bed. I really don’t know at this point if it’s a symptom or now a side effect of the meds. I’m guessing just a symptom.
I haven’t really written much about everything over this past month but nothing’s really changed. I’m still struggling a lot with my diagnosis of Fibromyalgia and with the pain, fatigue and everything else I have been dealing with for years.
I’ve just been having a couple of bad nights with it. To make matters worse Cory was walking down the stairs at Mom and Dad’s yesterday and when he was almost at the bottom he stepped wrong and felt a pop and now he is having a healed time putting any weight on his ankle. He only managed to work 1 day this time. He had to call in today cause he can’t stand on his leg for very long.
I know his CMT makes his ankles and lower legs weak and more prone to getting hurt but it’s at the point were it is happening constantly. I gave up on trying to get him to wear the leg braces a while ago.