Finally A Diagnosis

I was woken up on Saturday morning by a phone call at not quite 8 a.m. by my younger brother Denton. He really has no concept of time and wanted to tell me his good news. Apparently the day before when he was at his physiatrists office he finally after almost 25 years got a diagnosis. He’s on the Autism Spectrum. He was given an official Autism Spectrum Disorder diagnosis which we have been seeking out since he was about 3. The doctors suspected but for some reason would not settle on the diagnosis.

This was not really news to me. My parents, our family, my husband and I all suspected he was. We have other family members on the spectrum. I have a cousin with 5 kids under 10 and of them, 4 are somewhere on the Autism Spectrum. The father (my cousin) of the children has never been diagnosed himself but we all suspected as well and he was diagnosed with ADHD the same as my brother when he was younger. My Aunt was head of the Autism Society in Nova Scotia for a number of years. So we are very aware of Autism.

My brother was all excited because he really thought it would make such a big difference in his life. He has been struggling to hold down a job. He can’t fully take care of himself and still lives at home with my parents. They really struggle with him and with dealing with a lot of his issues both emotionally, mentally and behaviorally. As for me, I’m not so sure, to be honest, that it will make a whole lot of difference. This province has a lot of resources for children with Autism. Adults diagnosed in adulthood are virtually ignored. They don’t get the help that they need typically.

He’s still the same person. The lovable goofy younger brother who always annoyed me It’s still going to be a struggle for him every day. I sympathize with him. I can’t begin to understand the struggles he’s going through and honestly have no idea how to help him. I plan to do some more research on Autism. I know a lot but I could know a lot more. At least it now gives us something to work with. A diagnosis that will allow him to apply for and hopefully get the disability tax credit hopefully among other things. I am really hoping we can find programs and resources that will help as he gets older. My parents aren’t getting any younger. They need help with him.

Maybe the diagnosis will open up some doors as far as resources to help him on a day to day basis and to help my parents with him. He’s a bright young man. He’s moderate functioning when it comes to day to day things and being able to take care of himself but he needs help. Help that we can’t give him but maybe now we have a starting point. I am hoping maybe that with some research and some advocating that we can see what else we can do to help him on his journey.

7 thoughts on “Finally A Diagnosis

  1. Poor guy. Well, hopefully he can get some help. I know there are stuff around to help.

    I myself was in special education classes most of school (I was just on the hinge of needing them really). So I can kinda understand. I know getting a job after high school was tough. I did have a job coach to help with that (but other then that I barely needed them). Maybe look into some places that have stuff like that? I’m sure there’s something somewhere that can help!

    1. He was in special education classes as well and he had a full-time or part-time aid through a lot of elementary and junior high but he didn’t finish high school. He graduated grade 9, went on to grade 10 but the changing classes by himself, not having an aid (he didn’t get approved even though he had one for 8 or 9 years previous), and the bigger class sizes caused him extreme anxiety and he started refusing to go. The school refused any help and said to my mom that they didn’t really care if we went or not and weren’t providing any help so he just stopped going. It was a really hard time for him and them for the next couple of years. He’s trying to get his diploma still now at 28.

  2. I’m suprised that it took so long for a diagnosis, but I’m sure that it’s almost a relief to know for sure for him. Hopefully, the physiatrists that he is with know can help him since they have said for sure this is what he has.

    That’s the seems to be how it is in the US also, resources for children and none for adults. I have a cousin Autism he is closer to my age and he was never diagnosed because my aunt refused to get him help, and at 18 when he finally got a diagnosis they just put him in a home. The sad part was that he only got a diagnosis because she wasn’t a good parent and he got into trouble.

    I glad that your brother has you and your family as a support system. I’m sure it will be a struggle but at least yall are there for him.

    1. Part of the reason it took so long is my brother would never co-operate when he was in his pre-teens and teens when they were trying to do the testing. He refused to participate at all. He was hospitalized at one point for them to observe him and he literally refused to leave his bed the whole time he was in the hospital and refused to participate in anything so they really couldn’t do much.

      That’s a sin about your cousin. I have been concerned about this with my brother if he ends up getting into trouble. So far we have been able to keep him out of trouble but it’s hard sometimes. We’ve been working with him for years trying to get him to a point where he can function partially on his own but it just seems to be going nowhere.

      He gets frustrated and upset and it’s hard on him because he doesn’t quite understand why he’s having so much trouble with school and day to day things. He is back in school right now trying to get his high school diploma again through the community college and is really struggling. He’s trying his best. My dad went with him yesterday to see if they could get the school’s help getting him a tutor. Hopefully, they can find one. I would do it but I struggled myself through some of grade 11 and 12 which he is working on right now and I just passed barely in some subjects.

      I feel for him. It’s tough.

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