Is it denial or living life to the fullest?

I have to sometimes wonder that. I decided recently that I refuse to give in to Fibromyalgia. I refuse to give up and stop doing things and going anywhere. I am determined to keep active and continue to do the things I love even if they are a struggle a lot of the time. Is that denial that I have a chronic condition that causes widespread pain, cognitive issues, fatigue and balance issues among other things? Or is it just refusing to give up and live life to the fullest?

I am determined that for as long as I can I am going to continue to walk, hike, drive (as long as it’s safe), and do all the things I took for granted before being diagnosed. I’ve done this for the last 15 years off an on. Sometimes I did let it get the best of me and I stopped working, stopped living and hid away. My life is much different now though. I have a job I can work from home at my own pace. I have a loving and supportive husband who though sometimes likely annoyed never lets it show. READ MORE

Pain, Hospitals & TMI

I’m going to apologize in advance as this post may contain a little too much information. I admit sometimes I feel a little bit embarrassed or hesitant to talk about certain things, however that being said I feel it’s important to talk about women’s issues and health and it’s my blog and my life and what I’m going through so if you’re a bit squeamish, don’t like talking/reading about women’s health issues this post might not be for you.  So don’t say I didn’t warn you

This is also going to be really long! So, I’m going to jump right in.  As a teen, I had heavy, uncomfortable, painful periods that happened more often and lasted longer than most other girls my age. At 15, I suffered from numerous cysts on my ovaries that ruptured leaving me doubled over in pain, throwing up, feeling clammy with a high heart rate. I had numerous trips to the ER but luckily no surgery was ever needed. I was never diagnosed with PCOS but it was mentioned when I was younger. READ MORE

Chronic Pain & Fibromyalgia

The last part of January and the first week of February have been a bit rough. I was diagnosed years ago with Fibromyalgia and for almost 10 years I spent a good majority of every day trying to just cope with the chronic and incessant pain. For the better part of the last 3 years though I have had a huge decrease in pain to the point it was not top priority anymore. However, the last 2-3 weeks has been a bit rough. I am sore all over, my muscles and joints throughout my body hurt. I think maybe the pain in my hip and leg and the falls are what brought it on/brought it back.  That and sitting 10 hours a day or more typing doesn’t help. I tried Lyrica again but at the same time my doctor also put me back on metformin to see if we could get better control over my blood sugar and the side effects of the two made me miserable. Lyrica causes me severe vertigo. To the point, I won’t drive, and I need to drive so I am not going to take it.  My doctor wasn’t thrilled that I refused to take any medication for the pain so instead, he suggested I look into CBD oil, which I am not thrilled about so after researching it a bit I decided that was a no-go as well. Too expensive, not covered by insurance (obviously), etc. Just not an option.

On the plus side, we were able to afford insurance, only for me though and not Eddie which I am also not thrilled about. He will have insurance in another 9 months through work anyways I think, so we were more concerned about me at the moment and making sure I can still afford insulin, my Libre, metformin, etc. The insurance is only going to cover 80% to a maximum of $1000 a year towards medications and for the medical equipment such as my Freestyle Libre sensors it will only cover 80% to a maximum of $1000 in the first year, $1500 in the second and then $3000 in the third year onwards per year which means the first year it will only cover about half of the year for my sensors, but hopefully at that point I will have secondary insurance through Eddie’s work which will cover 50% but again it’s better than nothing at all. READ MORE

I’m going back to work!

I received the results of my bone scan today. Thankfully there are no fractures. I do have osteoarthritis in the hip and an impingement which the previous CT and x-ray showed but for now he just wants to keep an eye on that and re-scan in about 6 months. He believes the pain I am experiencing now is not actually stemming from my hip at all but my lower spine and sacral joint where he believes I may have caused some nerve damage which is affecting my left hip, thigh and groin as I have some numbness on the outside and inside of my upper leg and hip area as well as pain.

He wants to start me on Lyrica at a low dose for a few months to see if that helps with the pain. As I have Fibromyalgia and have been on medications before I am familiar with Lyrica and have been on it at higher doses before. My only concern is the side effects. I was never a fan of them before. Hopefully I can keep it a rather low dose. Between my doctor and pharmacy team I am going to stress I want the dose as low as possible. I can deal with some breakthrough pain as long as it is under control. I just don’t want super heavy side effects. READ MORE

I Really Need a Break

Most people need a break from work, me I need a break from being sick. I’m not talking diabetes or fibromyalgia or anything like that. I’m just talking colds, infections and the flu. I have literally lost track of the number of colds, flu and infections I have had over the last year or two. It seems I go from one to another to another. I have another cold right now.

It started last Tuesday with a sore throat coming on a few hours before I left work. I powered through a sore throat all day Wednesday and Thursday and some sneezing but it wasn’t all that bad, just more of an annoyance then anything. By Friday night the congestion set in, all stuffed up, runny nose, watery eyes etc., all the fun cold symptoms. I’ve always been told as an asthmatic not to take cold medication/cough syrup but I have always done it and apparently it can raise your blood sugar as well but at this point I am miserable. READ MORE