A Story About A Girl

Chronic Pain & Fibromyalgia

The last part of January and the first week of February have been a bit rough. I was diagnosed years ago with Fibromyalgia and for almost 10 years I spent a good majority of every day trying to just cope with the chronic and incessant pain. For the better part of the last 3 years though I have had a huge decrease in pain to the point it was not top priority anymore. However, the last 2-3 weeks has been a bit rough. I am sore all over, my muscles and joints throughout my body hurt. I think maybe the pain in my hip and leg and the falls are what brought it on/brought it back.  That and sitting 10 hours a day or more typing doesn’t help. I tried Lyrica again but at the same time my doctor also put me back on metformin to see if we could get better control over my blood sugar and the side effects of the two made me miserable. Lyrica causes me severe vertigo. To the point, I won’t drive, and I need to drive so I am not going to take it.  My doctor wasn’t thrilled that I refused to take any medication for the pain so instead, he suggested I look into CBD oil, which I am not thrilled about so after researching it a bit I decided that was a no-go as well. Too expensive, not covered by insurance (obviously), etc. Just not an option.

On the plus side, we were able to afford insurance, only for me though and not Eddie which I am also not thrilled about. He will have insurance in another 9 months through work anyways I think, so we were more concerned about me at the moment and making sure I can still afford insulin, my Libre, metformin, etc. The insurance is only going to cover 80% to a maximum of $1000 a year towards medications and for the medical equipment such as my Freestyle Libre sensors it will only cover 80% to a maximum of $1000 in the first year, $1500 in the second and then $3000 in the third year onwards per year which means the first year it will only cover about half of the year for my sensors, but hopefully at that point I will have secondary insurance through Eddie’s work which will cover 50% but again it’s better than nothing at all.

Since I am not taking anything at the moment for the pain which is pretty bad, like 8 out of 10 pretty much continuously all over, almost every muscle and joint, I have been searching for other alternatives and I think the only thing that seems to help relieve and make me comfier, or in other words 4 out of 10, effectively halving it, is heat. I had Eddie buy me a heating pad the other day and it seems to help. So does having the wood fire going, I think it’s maybe the dry heat. I want to get a heated throw blanket. I think I am going to get one next time I have a little extra if I can find one for a decent price. Tea seems to help too. I think it’s the cold. This cottage is so bitterly cold sometimes, it isn’t insulated very well and it’s damp. The weather has either been quite cold, like -20 with snow or it’s been around 3 and raining out. It seems to go back and forth between the two, which isn’t helping at all. [...] 

I’m going back to work!

I received the results of my bone scan today. Thankfully there are no fractures. I do have osteoarthritis in the hip and an impingement which the previous CT and x-ray showed but for now he just wants to keep an eye on that and re-scan in about 6 months. He believes the pain I am experiencing now is not actually stemming from my hip at all but my lower spine and sacral joint where he believes I may have caused some nerve damage which is affecting my left hip, thigh and groin as I have some numbness on the outside and inside of my upper leg and hip area as well as pain.

He wants to start me on Lyrica at a low dose for a few months to see if that helps with the pain. As I have Fibromyalgia and have been on medications before I am familiar with Lyrica and have been on it at higher doses before. My only concern is the side effects. I was never a fan of them before. Hopefully I can keep it a rather low dose. Between my doctor and pharmacy team I am going to stress I want the dose as low as possible. I can deal with some breakthrough pain as long as it is under control. I just don’t want super heavy side effects.

If this doesn’t help I am going to push for them to look into this more. I don’t know if there is a way to confirm nerve damage and where exactly it is. Sometimes it’s hard cause I am always in pain somewhere and it can be hard to isolate an injury from something else. I thought I had gotten pretty good at living with the pain but sometimes things happen that aggravate or cause other issues that are unrelated but cause more pain. He mentioned I may need more testing and see other specialists. I am not sure what other specialist I can see, I guess a neurologist maybe? [...]  READ MORE

I Really Need a Break

Most people need a break from work, me I need a break from being sick. I’m not talking diabetes or fibromyalgia or anything like that. I’m just talking colds, infections and the flu. I have literally lost track of the number of colds, flu and infections I have had over the last year or two. It seems I go from one to another to another. I have another cold right now.

It started last Tuesday with a sore throat coming on a few hours before I left work. I powered through a sore throat all day Wednesday and Thursday and some sneezing but it wasn’t all that bad, just more of an annoyance then anything. By Friday night the congestion set in, all stuffed up, runny nose, watery eyes etc., all the fun cold symptoms. I’ve always been told as an asthmatic not to take cold medication/cough syrup but I have always done it and apparently it can raise your blood sugar as well but at this point I am miserable.

Friday was a stay at home and relax on the couch day after I had a dentist appointment for a cleaning. I don’t work Fridays. I never canceled the cleaning because last time I tried to cancel a cleaning appointment when I woke up the morning of it with the flu they got really mad at me and wanted to charge me $100 for the appointment. So I just told her about the cold before we started and she said as long as I was okay it was fine. Later that evening the symptoms were more bothersome but still controllable with cold medication (Shopper’s Drug mart brand of Tylenol Cold basically). [...]  READ MORE