When you needs answers…

First off I just really want to say a big thank you so so much to everyone who has commented or even just read my posts over the last few months. Your support and comments have meant the world to me. Not even one bit of negativity or bashing from anyone. Just all kind thoughts and support and I really really appreciate it. This is why I love blogging and all of you guys!

As you may have guess from the title I want to write a little about things that have been going on with me in part over the last few months but really ever since all of this started years ago. In all of this there is one thing that has really really been bothering me. The need to basically “self-diagnose” because our health care system is so broken that it takes 5, 10, 15, 20 plus years to get a diagnosis and for me at least the diagnosis’s I have gotten just never really seem to fit or make sense fully. [...]  READ MORE

How fibromyalgia affects other illnesses and injuries

Image Credit: Vargazs from Pixabay.

Fibromyalgia & Oseoarthritis

One thing I have noticed over the years since being diagnosed in my early 20’s with fibromyalgia is that it tends to intensify everything else that is going on. Whether it is a psych issue such as anxiety or depression, a physical issue such as osteoarthritis or a disease such as type 2 diabetes, fibromyalgia seems to make dealing with them so much harder. I have learned a lot over the years about my chronic illnesses but there are times when they still take me by surprise and times when I wish things could go back to the days before any of this started affecting me. If there ever really was such days. Honestly, I can’t really remember a time that I didn’t get sick easily or injured easily. Even as a child I had strep throat and ear infections constantly. I caught everything going around from rubella as a baby to chickenpox to scarlet fever mumps, measles, and hand, foot, and mouth among others. I’m surprised I didn’t have the plague to be absolutely honest.

I am very prone to injury. I am not sure if this is just because I am clumsy or if it is more related to the fact that people with fibromyalgia seem to be more prone to falls. One study mentioned on WebMD suggests that this is because people with fibromyalgia tend to have balance issues. We apparently score worse on balance tests than people who don’t have fibromyalgia. It also mentions that the number of medications had no relationship with the scores but as we take more medications typically it can’t be ruled out. Not sure how they came up with that one… [...]  READ MORE

Chronic Pain & Fibromyalgia

The last part of January and the first week of February have been a bit rough. I was diagnosed years ago with Fibromyalgia and for almost 10 years I spent a good majority of every day trying to just cope with the chronic and incessant pain. For the better part of the last 3 years though I have had a huge decrease in pain to the point it was not top priority anymore. However, the last 2-3 weeks has been a bit rough. I am sore all over, my muscles and joints throughout my body hurt. I think maybe the pain in my hip and leg and the falls are what brought it on/brought it back.  That and sitting 10 hours a day or more typing doesn’t help. I tried Lyrica again but at the same time my doctor also put me back on metformin to see if we could get better control over my blood sugar and the side effects of the two made me miserable. Lyrica causes me severe vertigo. To the point, I won’t drive, and I need to drive so I am not going to take it.  My doctor wasn’t thrilled that I refused to take any medication for the pain so instead, he suggested I look into CBD oil, which I am not thrilled about so after researching it a bit I decided that was a no-go as well. Too expensive, not covered by insurance (obviously), etc. Just not an option.

On the plus side, we were able to afford insurance, only for me though and not Eddie which I am also not thrilled about. He will have insurance in another 9 months through work anyways I think, so we were more concerned about me at the moment and making sure I can still afford insulin, my Libre, metformin, etc. The insurance is only going to cover 80% to a maximum of $1000 a year towards medications and for the medical equipment such as my Freestyle Libre sensors it will only cover 80% to a maximum of $1000 in the first year, $1500 in the second and then $3000 in the third year onwards per year which means the first year it will only cover about half of the year for my sensors, but hopefully at that point I will have secondary insurance through Eddie’s work which will cover 50% but again it’s better than nothing at all.

Since I am not taking anything at the moment for the pain which is pretty bad, like 8 out of 10 pretty much continuously all over, almost every muscle and joint, I have been searching for other alternatives and I think the only thing that seems to help relieve and make me comfier, or in other words 4 out of 10, effectively halving it, is heat. I had Eddie buy me a heating pad the other day and it seems to help. So does having the wood fire going, I think it’s maybe the dry heat. I want to get a heated throw blanket. I think I am going to get one next time I have a little extra if I can find one for a decent price. Tea seems to help too. I think it’s the cold. This cottage is so bitterly cold sometimes, it isn’t insulated very well and it’s damp. The weather has either been quite cold, like -20 with snow or it’s been around 3 and raining out. It seems to go back and forth between the two, which isn’t helping at all. [...] 

1 2 3 13